Stickler Syndrome Support Group (SSSG)
Stickler Involved People (SIP)
New Stickler Syndrome Clinic at Massachusetts General Hospital
Contact: Dr. Ruth Liberfarb, MD, PhD.
Canadian Chapter of Stickler Involved People
CORD (Canadian Organization of Rare Diseases)
Stickler Syndrome-Australia Support Service (SSASS)
Address: 7 Nojee Court, Kallangur
Phone: (07) 3886 0665
Website: www.bosk.nl (Dutch support only)
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